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Partner Organizations

Connect with a global community of families, physicians and scientists to learn more about pediatric cardiomyopathy. The Danon Foundation is a trusted resource for people affected by Danon Disease to find and share knowledge and to build community. Providing support for patients and families with dilated cardiomyopathy through education, research and advocacy. The Hypertrophic Cardiomyopathy Association (HCMA) is here to help you understand more about your big heart. The HCMA offers Support, Education, and Advocacy for Hypertrophic Cardiomyopathy (HCM) – Empowering patients and advancing research for a brighter future. Offers patient-to-patient support. Unique brand of raw, real educational content plus…

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Our Partners & Sponsors

We couldn’t do what we do without the help of our generous industry sponsors and partner organizations. Together, we can bring greater awareness to the role genetics plays in the diagnosis of cardiomyopathy.  Partner Organizations Industry Sponsors

About Genetic Cardiomyopathy (OLD)

Cardiomyopathy can have many different names and causes. At the Genetic CardioMYopathy Awareness Consortium, our focus is on cardiomyopathy that is inherited, or passed from one family member to the other. There are 55-75 genes that are known to cause genetic-based cardiomyopathy. Close to half of all cardiomyopathy cases have some type of genetic basis or are inherited but only a very small percentage of diagnosed cardiomyopathy patients are ever asked to get genetically tested by their cardiologists even though their governing organizations recommend genetic testing. If you are interested in exploring genetic testing go to Support For Your Journey.…

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Did You Know? Nearly 50% of all cardiomyopathy cases in the United States are inherited, but only 1% of cardiomyopathy patients get genetically tested. Help us save lives! Free Genetic Testing For Medical Professionals Gene-Specific Groups Knowledge is Power That’s what we believe at the Genetic CardioMYopathy Awareness Consortium. Maybe you’ve just learned that you or a family member has been diagnosed with a genetic (sometimes called inherited) heart condition, like cardiomyopathy. Now, what do you do? How do you talk to your doctor, your family or your loved ones? Knowing there may be a genetic heart condition that runs…