Cardiomyopathy Patient Support

The DCM Foundation and the Genetic Cardiomyopathy Awareness Consortium are working with multiple cardiomyopathy groups to provide much-needed support for heart failure patients and families.

Patient support resources include:

  • Genetic Cardiomyopathy Awareness Consortium
  • DCM Foundation
  • All major cardiomyopathy patient support organizations
  • Cardiomyopathy Support Facebook Groups.

Please see below for additional information about these resources.

Stats to Know:

  • Close to 50% of cardiomyopathy cases have some type of genetic basis.
  • But only about 1% of diagnosed cardiomyopathy patients get genetic testing for their disease.
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The DCM Foundation was founded in 2018 with a mission to provide HOPE and support to DCM patients and families with Dilated Cardiomyopathy through education, research, and advocacy.

The DCM Foundation’s mission is being executed through three foundational pillars:

  • Information and Education
  • Patient and Family Support
  • Understanding the Need for Genetic Testing

Patient Support Organizations

There are various types of cardiomyopathy and several organizations that provide hope and support for these patients. If you or a family member has been diagnosed with cardiomyopathy, the groups below may provide great information and support for you.

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