Cardiomyopathy Patient Support

The DCM Foundation and the Genetic Cardiomyopathy Awareness Consortium are working with multiple cardiomyopathy groups to provide much-needed support for heart failure patients and families.

Patient support resources include:

Genetic Cardiomyopathy Awareness Consortium
DCM Foundation
All major cardiomyopathy patient support organizations
Cardiomyopathy Support Facebook Groups.

Please see below for additional information about these resources.

Stats to Know:

Close to 50% of cardiomyopathy cases have some type of genetic basis.
But only about 1% of diagnosed cardiomyopathy patients get genetic testing for their disease.

DCMFoundation.org

The DCM Foundation was founded in 2018 with a mission to provide HOPE and support to DCM patients and families with Dilated Cardiomyopathy through education, research, and advocacy.

The DCM Foundation’s mission is being executed through three foundational pillars:

Information and Education
Patient and Family Support
Understanding the Need for Genetic Testing

Cardiomyopathy
Patient Support Organizations

There are various types of cardiomyopathy and several organizations that provide hope and support for these patients. If you or a family member has been diagnosed with cardiomyopathy, the groups below may provide great information and support for you.