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Additional Resources

Finding the right information for your journey is important, and we try to make it as simple as possible. Support and protect yourself, your family and your legacy with the resources available through the patient support organizations listed below: Finding Expert Care It is critical to get the right care. Many cardiologists may not be heart failure specialists or equipped to treat genetic cardiomyopathy. At the present time, there is no definitive way to find the “right doctor.” However, if you want to locate a heart failure or cardiomyopathy specialist, our partners at the DCM Foundation have created some resources…

Support For Your Journey

If you or a family member has been diagnosed with cardiomyopathy and your doctor does not know what caused it, then you should get genetic testing. Also, if you suspect that genetic cardiomyopathy runs in your family, you should also be tested. A large percentage of cardiomyopathy that is of an unknown cause is inherited or genetic. Getting tested could improve and save your life, as well the lives of those you love. Follow the four-step journey below to learn more. Should I Get Genetic Testing? Important reasons you may want to get genetic testing for cardiomyopathy: Nearly 50% of…

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Our Partners & Sponsors

We couldn’t do what we do without the help of our generous industry sponsors and partner organizations. Together, we can bring greater awareness to the role genetics plays in the diagnosis of cardiomyopathy.  Partner Organizations Industry Sponsors

About Genetic Cardiomyopathy

Cardiomyopathy can have many different names and causes. At the Genetic CardioMYopathy Awareness Consortium, our focus is on cardiomyopathy that is inherited, or passed from one family member to the other. There are 55-75 genes that are known to cause genetic based cardiomyopathy. Close to half of all cardiomyopathy cases have some type of genetic basis or are inherited but only a very small percentage of diagnosed cardiomyopathy patients are ever asked to get genetically tested by their cardiologists even though their governing organizations recommend genetic testing. If you are interested in exploring genetic testing go to Support For Your…

Campaign Overview

About Us The Genetic Cardiomyopathy Awareness Campaign was launched in the U.S. in early 2023 by eight U.S.-based cardiomyopathy patient groups to raise awareness about the need for genetic testing for cardiomyopathy patients and family members.  The purpose of this campaign is to raise awareness and to get more cardiomyopathy patients and family members genetically tested, which will help save lives and advance genetic research and therapies. Did You Know? Approximately half of all patients diagnosed with cardiomyopathy in the U.S. have some type of genetic cause, while only about one percent of cardiomyopathy patients get genetic testing for their…

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Did You Know? Nearly 50% of all cardiomyopathy cases in the United States are inherited, but only 1% of cardiomyopathy patients get genetically tested. Help us save lives! Support for your journey Should I Get Genetic Testing for Cardiomyopathy? Did you know that children have a 50% chance of inheriting the genes that cause cardiomyopathy from a parent who has the condition? While you might not have symptoms, you may still be at risk if cardiomyopathy runs in your family. That’s where genetic testing can help. Learn more Support for your journey Pros and Cons of Getting Genetically Tested for…