Connect with a global community of families, physicians and scientists to learn more about pediatric cardiomyopathy.
The Danon Foundation is a trusted resource for people affected by Danon Disease to find and share knowledge and to build community.
Providing support for patients and families with dilated cardiomyopathy through education, research and advocacy.
The Foundation for Inherited Arrhythmias (FIA), formerly the SADS Foundation, is dedicated to saving lives and improving the quality of life for individuals and families affected by inherited arrhythmia conditions.
The Hypertrophic Cardiomyopathy Association (HCMA) is here to help you understand more about your big heart.
The HCMA offers Support, Education, and Advocacy for Hypertrophic Cardiomyopathy (HCM) – Empowering patients and advancing research for a brighter future.
Offers patient-to-patient support. Unique brand of raw, real educational content plus powerful advocacy efforts. Relatable for young and beyond. Mission to end preventable cardiac deaths.
Our mission is to unite LMNA experts, key opinion leaders, and patients in order to accelerate research and development, aiming to discover an effective treatment for LMNA-related cardiac diseases.
A resource and support system for all heart patients and families impacted by heart disease, including cardiomyopathy.
Our mission is to find an affordable treatment for the genetic heart muscle disease PLN. As a foundation, we fund scientific research and bring scientists together.
We provide educational resources, support networks, advocacy initiatives that promote early detection, proper diagnosis, and effective awareness for Postpartum Cardiomyopathy (PPCM).
Our mission is to raise public awareness of sudden cardiac arrest and promote initiatives that help save lives through education, research, and community.
Offering support and resources for patients or families with a mutation in the Titin gene.
The leading voice for the millions of American women living with or at risk of heart disease.
Living Outside the United States?
Here are organizations that can help support you on your journey.
An alliance of more than 50 cardiomyopathy and heart failure patient organizations from many countries advocating on behalf of those living with or affected by heart disease. Click to see if a support group is available in your country or geographic region.
The only charity in the UK supporting children, young people and adults living with cardiomyopathy, working to provide support and information, campaigning for better access to quality treatment, saving lives through raising awareness and providing hope through shaping research.