Thrive with your Cardiomyopathy Gene
One place to understand your genetic test result, connect with others who share it, and get support through your journey.
Find your gene
DES (Desmin)
DSP (Desmoplakin)
FLNC
Gene Elusive
LAMP2 (Danon Disease)
MYBPC3
PRKAG2
Don’t see your gene?
We’re actively building out new gene communities.
While we might not have a dedicated page for yours just yet, we can keep you in the loop once we do.
Sign up for your gene community below and get notified as new information develops.
What’s in your gene resource page?
You don’t need to figure everything out today. One page walks you through it, step by step.
1
Understand your result
Clear explanations about your genetic cardiomyopathy diagnosis and what it means for your heart, written for patients, by patients.
2
Connect with your community
Join a private group of people who share your exact cardiomyopathy gene. Ask questions and hear from others walking the same path.
3
Take part in research
Learn about research and clinical trials specific to your gene and get notified when new studies are open, so you and your family can consider options that could help.
“Connecting with families who share your diagnosis can provide support, understanding, and sense of community.”
Sharisse Jimenez-Cyrus
Genetic Counselor
You’re joining a growing community
Thousands of patients and families are already informed, connected, and supported. Our communities grow every day.
17+
Gene Communities
4,000+
Families in our communities
20+
Genetic cardiologists and genetic counselors
7+
Clinical trials advancing genetic cardiomyopathy care
Frequently asked questions about our gene communities
My family member or loved one has been identified with the gene, can I join the community?
Yes. Our communities are for anyone affected by a genetic cardiomyopathy, whether you carry the variant yourself or you’re supporting someone who does. You’re welcome either way.
Is there any cost to join, and is my information private?
Joining is completely free. Your information is kept private and is never sold or shared with third parties without your permission.
Will joining help me learn about clinical trials?
Yes. When you join, we’ll notify you about research and clinical trials specific to your gene as they open, so you and your family can explore options that could help.
What is genetic testing?
Genetic testing looks at your DNA to identify the specific gene variant linked to cardiomyopathy. Knowing your variant helps guide your care and tells your relatives whether they may benefit from testing too.
How can I get genetically tested?
Talk with your cardiologist or a genetic counselor, who can order testing and walk you through the results. We also share information on no-cost testing options and can help point you in the right direction.
Join my gene community
Get support through your journey and be the first to know about research and clinical trials that could help you and your family.
Strictly Private: Your data is never shared with third parties without your permission.
Zero Pressure: You aren’t committing to anything.
Your Choice: Opt-in or out of communications at any time.
Have a different gene? Search here.