Upcoming Research Opportunity

A new research study is inviting children with heart failure related to Danon disease or another heart condition and/or their caregivers to take part in one 75-minute interview.

  • Learn about the experiences of children with heart failure related to Danon disease or another heart condition, and
  • Gather feedback on a health questionnaire for patients and caregivers of patients with heart failure related to Danon disease or another condition
  • Are 8-17 years old and have been diagnosed with heart failure related to Danon disease or another heart condition
  • Are a caregiver of a child 8-17 years old who has been diagnosed with heart failure related to Danon disease or another heart condition
  • Can provide confirmation of diagnosis of heart failure and the related condition (this could be a screenshot from a patient portal that shows the diagnosis, or a letter from a doctor)
  • Currently live in the United States
  • Are able to read (if age 13 or older) and speak English fluently
  • Are willing and able to participate in an interview for approximately 75 minutes

If you are interested in this study, please send an email to: eirini.kamperou@iqvia.com

A member of the study team will contact you at a later date to determine if you are eligible.

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