Advancing Care in Genetic Cardiomyopathy
The Genetic Cardiomyopathy Awareness Consortium (GCAC) partners with clinicians to increase awareness of genetics in cardiomyopathy, promote genetic testing, provide patient education, and research participation across inherited cardiomyopathies.
Professional Education
Monthly Webinars
GCAC presents monthly webinars on important topics for both patients and clinicians that are available live and on-demand.
Topics include: Research updates, emerging therapies, patient issues, clinical trials, and newtechnologies.
Expert Videos
GCAC has developed a series of gene and disease-specific expert discussions by leading cardiomyopathy experts from around the world.
Patient Engagement & Support
GCAC supports moderated, gene-specific communities that provide peer support and serve as trusted channels for research updates, clinical trial awareness, and education.
Genetic Testing Access
GCAC has helped expand access to no-cost genetic testing for cardiomyopathy patients and first-degree relatives. We have also developed a series of videos to explain how genetic testing can improve care, when to get genetically tested, and understanding test results.
Research & Clinical Trials
GCAC works with bio-pharmaceutical companies to raise awareness of upcoming clinical trials and aids in the recruitment of clinical trial participants.
- Awareness of ongoing and upcoming trials
- Patient-centered outreach support
Patient Registry
The registry has been created with the intent to develop a large, global and long-term database and resource on genetic cardiomyopathy and invites eligible participants from around the world to contribute their information and help advance genetic cardiomyopathy research. De-identified data compiled in the registry aims to answer important questions, allow a better understanding of genetic cardiomyopathy, and potentially identify new research opportunities.
- Awareness of ongoing and upcoming trials
- Patient-centered outreach support
Partner With GCAC
GCAC collaborates with clinicians, researchers, and industry partners to advance care in genetic cardiomyopathy.